health – Maria Deira http://www.mariadeira.com writing, writing, lupus fighting Thu, 13 Apr 2017 17:08:17 +0000 en-US hourly 1 https://wordpress.org/?v=4.7.6 42086538 Awake! http://www.mariadeira.com/2012/11/awake/ http://www.mariadeira.com/2012/11/awake/#comments Sun, 25 Nov 2012 10:02:17 +0000 http://www.mariadeira.com/?p=847 Read more

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I’ve had a few days of insomnia; however, I’ve been doing well managing my energy. I don’t get upset about the insomnia — I’m years past punching my pillow at night trying to fall asleep. If things continue this way, I’ll probably use the amber glasses again. So, overall, this week’s bout of sleeplessness is more of an annoyance than anything else.

Today felt especially long — not in a terrible way but in a productive way. Still, you wouldn’t think I did anything! The house is a bit untidy at the moment, even though I spent the morning cleaning. Oh well! I’m trying to relax about clutter — TRYING. Clutter makes me anxious, as does having too much stuff I find myself constantly weeding materials to donate. Anyway, I cleaned and, most importantly, I organized all my medical receipts, reports, tests, paperwork. It’s not perfect but I know where my copays are, where my paid hospital receipts are, appointments, EOBs, etc. are. I’ve been trying to get this all in order since summer but was avoiding it. A bill I received in the mail today prompted the filing frenzy. Although the bill is small, it came with six pages of visits I overpaid and copays I didn’t dating back to 2011! I haven’t received any bill in the last year and I was told at visits that I didn’t have a copay even though I knew I did. It’s all so confusing. And why does it take my insurance co. one to two months to pay my doctors? Such a complicated, inefficient process. And, according to my math, I believe there’s an error — so I had to find my receipts and do some calculating. I think they may owe me $2.58. Hmm.

Writing and reading have been slow. I did finish a story last week. Time for revisions!

In other news, I managed to take some photos of new items I’ll be adding to my Etsy shop. Old “how to” booklets, vintage wristwatch parts, owl salt & pepper set, linen napkins. I also have a pile of vintage pillow cases with lace edges. Nicely stacked linens make me happy! What else: Mexican pottery, canning tongs, jewelry, and other goodies.


That’s it for now. I’ll try to post before and after photos of some changes we made to the house. Nothing major — mostly painting. Amazing how paint and color choices can change the feel of an entire room.

Okay — ciao, ta-ta. buenas noches, buh-bye, good night!

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Work & House & House & Work http://www.mariadeira.com/2012/08/work-house-house-work/ Thu, 23 Aug 2012 15:31:27 +0000 http://www.mariadeira.com/?p=773 Read more

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The last time I updated about my personal life, I was quite upset with my insurance company, among other things, and how they did not approve a medication I desperately needed. A month later, they finally decided to approve the medication, which three specialists agreed I needed to take. It ultimately took a letter from the third specialist stating that if I didn’t receive the medication, I would most likely end up in the hospital (true) and then the insurance company would have to pay a lot more than $670/mo.

Once my prescription was filled and paid for, I made a claim to have the $700 (less any copays) refunded. My argument was that they had paid for the four refills prior to denying me coverage and that after a month of trying they approved coverage through December, thus they should have paid for May as well. A month after my request, I received a check for $670. Hooray.

In early July, I began feeling well enough to start really missing my job. I put in a request to return to work, got my doctor’s letter ready, and on June 30th I was back! This is the middle of my fourth week. The first two weeks went great but by the end of third week, the fatigue worsened. My garden, the house, painting, and my writing & art have all been set aside so that I can rest after work. And this is with only working part-time!

This past weekend I finally cleaned the whole house, which felt good but frustrating. I had started painting the entryway in late June but still have the trim & stairway to paint. I don’t want to fall into the rut again of only focusing on making it to work, keeping up the house, and having no life or no fun. This week has been better than last, but I’m still tired, a bit sad, and definitely irritable. I think I hide it well at work. I do worry about having to take another leave or, worse, not be able to work at all, getting in debt, making life tough for my partner and me, losing everything, becoming a bag lady. ;) Of course, I shouldn’t think like that. So far, so okay — ha.

This weekend my goal includes researching for my novel, reading a couple of novels, painting the entryway trim, and returning to work on the garden. I also need to really get back into a strict schedule of sleeping & waking, eating, taking my meds, and resting. I’m also looking forward to planting fall crocus in September.

As long as I remind myself to do one thing at a time (instead of trying to to do as much as I can all at once) and remember that I have time enough to save up what I had to use from my emergency fund during the 7 1/2 months I didn’t receive a paycheck and to update certain things in the house (counter tops, den, balcony, porch), everything should turn out splendidly!

I hope.

Below are photos of my entryway. Eventually the balusters, stair risers, & trim will be painted white. I may carry the soft gray from the loft to the wall behind the stairway. The living room will be painted white — modern & airy.

The second photo is a limited edition print by Lee Strasberger. She had completed a number a drawings inspired by Brassai’s photography of Paris at night (1933). I love Brassai & I love Strasberger’s interpretation — I think the piece looks gorgeous in this frame and against the turquoise/teal blue. I’m hoping to buy more of her work for other parts of the house. You can buy original art and prints by Lee here: Lee Strasberger on Etsy

Lee Strasburger Entryway ]]>
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Hiatus? http://www.mariadeira.com/2010/10/hiatus/ Mon, 18 Oct 2010 06:45:50 +0000 http://www.mariadeira.com/?p=445 Read more

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I think I’m going to take a break in October from writing flash fiction. Focus will be on longer stories. As most people know, I suffer from lupus as well as two other chronic illnesses, and I’ve had a tough year coping with all three. Part of this break will also be to focus on my health and, I hope, gain back some energy, strength, and brain power.

In the mean time, enjoy new issues of Kaleidotrope #10 (“The Giant of Malheur Park” is in this one!), A cappella Zoo, Abyss & Apex, Strange Horizons, and Brain Harvest. Oh, and enjoy this:

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